Created a New Tote

When Robin and I got the ideas for our t-shirts, we were only thinking about how they would help our lives. However, when other parents and families of Autistic people heard about them they wanted us to make them available to anyone. Thus our Autism Bites t-shirts were born.

Since that day I've had a few requests to add to the choices available. I was recently contacted by a parent and a group of teachers that wanted a tote bag with a face and saying combonation that we did not have. Here is what they wanted -



Its a great idea and one that can be used for any disorder, not just Autism. Christmas is approaching, if you can't find what you like in what we are offering let me know and I'll see what I can do. Thanks!

Dad

Fed Up With Autism Fighting

Here is a great posting opinion from Tiffany and my comments too:

Tiffany this is a fantastic post and one that EVERYONE should follow the advice of. Every family is different, each Autistic child is different from every other Autistic child. No one should tell another parent or person with Autism what they should be doing with their life... even if they think they KNOW that family from watching them on TV. ;)

Our family goal is to increase the awareness, acceptance and understanding of Autism and all of it's various aspects and effects on families.

Some have accused me of trying to make money from my children. First if they follow your post's advice they shouldn't assume they know what I'm doing and be quite. However we've made money from our situation from a 'location fee' from the film production company. This is a standard in their industry. Then we have made an income from the sales of the Autism t-shirts that Robin and I designed.

But all the other TV, radio, magazine, blog and internet interviews we have received nothing. AND I'm not asking that they do.

95% of the comments we get on our blog or from emails have been positive and supportive. And I will continue to advocate for my children until the day I die. We too did not yell, "Yipee!" when we got the diagnosis for the children. We too did LOTS of grieving, for around 1 1/2 years. I was let go from the job I had at the time because quite frankly, at the time I was useless and not able to have my head into work. Worrying and wondering about what life was going to be like with Autistic children was just too much. It was tough and still is and IS financially hard. And I'm not sorry and will not apologize for mentioning that Autism hits families in the wallet. We've received many, many emails confirming this from other families. And they too are glad that the world is starting to understand those financial hardships. Its a FACT that people need to realize.

We need to stop the fighting among ourselves. It's a waste of time, effort and emotions. Another parent may want to chelate or put their children through test after tests or treatment after treatment after treatments. Or do nothing. Another parent may not agree with either and you know what? Each one is doing right thing for THEM.

That "Autism Czar" appointment that President Obama promised? He/she should understand all the above of what you and I have said here. And have a plan for ALL families and persons affected by Autism. And we need to get the support from this Czar... NOW. Too much talk and not enough action.

My creed: Autism IS a Spectrum Disorder, CAUSED by a spectrum of reasons, needing a SPECTRUM of treatments or solutions and requiring a spectrum of funding.

Peace and Blessing to all... Nuff said.

Dad

Be an Autism Advocate

Making calls and emails are good starts. Do a search on the web page of your closest major newspaper and see what kind of Autism stories they've done. If they haven't done anything in the last six months... call them.

How we got started: We found out all 6 were Autistic in fall of 2006. While watching "Extreme Home Makeover" in Feb 2007 they said the family had the most documented Autistic children in one family... five. Robin and I looked at each other, "Guess we have the most". I emailed the local ABC station the next morning that we have 6 ASD kids and got an email from a reporter back right away. They were doing a story that night and wanted some footage on our family. We were on the news that night.

A month or so later I called our two major newspapers. One was more excited then the other to do our story. An interview and photos later and we were on the front page of the Sunday paper. (Check it out and add a comment to their website, that can insure that it stays available) That was June 2007.

Because of that newspaper article we were contacted by Readers Digest, People Magazine and Figure 8 Films (fro Discovery Health). People came in July for the interview, the photographer came in December. (long story). The film crew first came in Dec 2007 for the next 6 months. Each visit was 2-4 days.

The People magazine article came out in Feb 2008 and the interviews with Good Morning America, Inside Edition and Larry King soon followed. We had also been contacted by the Helen DeGeneres show and Oprah. Nothing has come of those as of yet. "Home Makeover" did contact us and wanted us to apply, but you need to own your home or have property they can build on. We rent and have no land.

Between the beginning and now I've made calls (lots) and emails to many politicians and various groups and individuals (the rich and famous). You wouldn't believe how many people who SAY they support Autism have never responded. I even sent Jenny McCarthy one of our t-shirts and never heard back.

Yes, the hours are long and there are many disappointments in trying to increase Autism awareness. But, as I tell many people, Autism IS my life. I figure it's my job and "calling" in life to do all I can. I've felt dumb standing around an event where I know nobody and try to start conversations. Then try to bring the conversation around to Autism. I've actually created a Autism business card for myself and Robin.

But, to do nothing... I feel is just not acceptable. Do something, anything... it will make a difference. If every parent will be an advocate we can make a HUGE difference for our children. So make calls, write, search and read. Do what you can when you can. We are all in this together and we need each one of us.

Dad

Autism T-Shirt Contest Winner

I know... I know... the contest has been over for a week. AND, I've been wanting to put out a new post. But, that little thing called LIFE has been getting in the way. I'm still working on my 'business at home' website. Besides it being a new creation to earn us the moola for me to continue to stay at home; it will also be a vehicle to help Parents of Autism stay home if they choose. More about that later...

Anyway here is the winning story. There were some really good ones, sorry we couldn't send you all a shirt.

The story:

Wasn't sure where to send this, or even if this is a valid entry or not, but here goes.

We don't have an autism bites t-shirt, but GOODNESS I wish we did, so instead of telling you a story about when our t-shirt helped or hurt us the most, I will tell you about when we Wished to heaven we hadn't put it off to buy one.

My Name is Nicole ..., and I have 4 wonderful children, all of them special needs, but at this point only one has been diagnosed with an ASD, she is currently diagnosed with PDD NOS, with secondary OCD, but my sister who works in a school with autistic children every day says "get a second opinion" and so, slowly we are.

My Three year old, my angel, Keira is our youngest, and also our autistic child. given that she is also developmentally delayed, she is JUST hitting what for her are the terrible twos, which means (you guessed it) an increase in the meltdown tantrums that we have become so accustomed to. You know the ones, they sound like her world is coming to an end, that you just told her that her puppy was dead, and that her favourite blanky had been thrown in the trash, and that her favourite "baby" had been kidnapped by dingos, and that IF she could understand these statements coming from you, this is how you would expect her to react... Head thrown back, mouth open wide, starting with a heart wrenching cry that escalates into an ear piercing screech that would scare the dog away... if you hadn't just told her he was dead... then the body hits the floor, or anything in arms reach gets thrown, THEN she hits the floor... I am sure you know the meltdowns I am talking about.

So here we are, travelling from point A to point B, and we hear from Keira, who was non verbal 6 months ago, but who has made leaps and bounds in the past few months "I honry" (translation I'm Hungry) so we pull into a restaurant from one of those big chains, that are usually noisy enough as it is, so as not to be concerned that her excessive noise will disrupt other patrons. we walk in and you can hear the crickets chirping outside and down the block... there are three tables with people in them, and the bar upstairs sounds empty. UH OH, I think I hope we get fast service... when Keira wants something she is rarely patient about it, and it has gotten so, we know before we walk in what we are ordering her, so that we can order it WITH the drink order and have it there before anything else... welllllllll

the hostess seats us, and we put Keira into the highchair, and HERE starts meltdown number one, she yells she screams, the crayons fly, the coloring page goes the way of the wind her cutlery gets thrown and knocks over the salt and pepper, we offer her a dessert menu to have something to look at, and she throws it and beans my 5 year old in the head with it, who then starts crying of her own right because it hurt. the couple two tables down gets up and leaves after quickly receiving their bill for drinks only, and gives us a disgusted look on the way out...
This carries on for about 5 minutes, till Dad gets frustrated and goes outside with Keira until we at least have drinks, and maybe appetizers, something to keep her busy...

Another 5 minutes, still no waitress, no acknowledgement from ANY of the servers that we are even there. two more minutes thinks I as I ready myself to pack up my 5 year old and 10 year old and leave with dad to find a golden arches (the 16 year old wasn't with us that day)

Just as I give up, and tell the kids lets go, this fresh faced MAYBE 20 year old waitress comes rushing to the table...

"I'm so sorry" says she, "no one told me they sat my table" (again three other tables of patrons, we were hard to miss) " are we waiting for two more? or should I start with the drink orders?" she says indicating dad and Keiras chairs

"no," I reply calmly "my three year old autistic daughter (we don't bother trying to explain PDD NOS to people, they don't get it) was screaming and scaring away the customers so my husband decided to take her outside until we had food or something on the table, so she wouldn't disturb anyone else"

and the reply, TOTALLY baffling to my ears... "OH I heard the screaming, thought it was just some kid being bad, we get those ALL the time, I didn't realize it was my table though..." (it would help if you looked at your tables, I think but I don't say it out loud, because the statement would be wasted, so Instead I say)

"we're ready to order," and I order for all of us at once, SPECIFYING that the children's meals should come out first, so that dad and Keira can come back inside... but just as I say this, they come back in anyways...

10 minutes later, mine and dads meals come out, followed by the other two kids meals a few minutes later, with Keiras coming dead last (and all we ordered her was sliders) but somewhere in the middle of all the food orders, our waitress finds the time to come over and say to us, trying hard to be heard over the tantrumming child "awwww whats wrong sweetie? you look so sad!" and when Keira "ignores" her, she looks dad square in the face and says "is there any way to quite her down? the other customers keep looking over here, like she's bothering them"

"HOT DOG WE HAVE A WEINER" I think knowing full well that anything I say at this point will mean nothing to miss university, because she has no idea what autism is, or that the best we could do is just what we are doing, deep pressure stimulation, and talking to her calmly until she relaxes, so dad says instead (quite sarcastically I might add) "she cant cry and eat at the same time" (ok we all know she can, but I think he made his point) so she hurried away, and yet another couple walks by, looking disgustedly at us as our daughter screams her head off) and the waitress FINALLY returns with Keiras dinner... suddenly... silence

Dad and I finally turn to our cold dinners, and all I can think of is... wish I had one of those shirts
we will be ordering three as soon as possible... and we won't be going back to this particular outlet of this restaurant

Nicole

--------------------------------------------------------

We too have been in the same type of situation as Nicole. I'm sure that MANY of you have had similar fun outings. And that is the reason we came up with the AutismBites t-shirts in the first place. Life is sooooooooo much easier when they wear them.

Nicole will have one less t-shirt to buy now.

Dad