Swine Flu Shots?

Every year the "experts" predict what flu shot is needed for the upcoming season. From many reports and books I've read on the subject (what parent of an Autistic child hasn't studied this subject?) the favored choice is effective less than 25% of the time.

It's a crap shoot.

Then there is the 'extras' that are included in each dose. The thimerosal content of a lot of shots has been greatly reduced, but not necessarily the aluminum or formaldehyde, or the use of fetal and animal tissues in the manufacturing of them.

I've read that this shot DOES include thimerosal. Thanks for your concern CDC, but no thanks!

Autism Rate Now 1 in 100, Still Autism x 6 for Us

1 in 100? It's scary, it's terrible, it's the end of the world!! Naaaah, if you have children with Autism you just learn to deal with it.

However, friends don't come over any more, family avoid you, you're in foreclosure or going bankrupt. If you are so bold as to step out into the outside world you get the "look" or stares usually followed by unsolicited parenting advise.

You may not be able to hold down a regular job. You need a lot of time off. You had the hope that there was a government program, an agency or charitable organization that could help with SOMETHING.

Then 'how life really is' sets in.

After awhile you come to realize its all up to you. You stop feeling sorry for yourself. You stop caring about the mean people, uncaring family members or government indifference to your plight.

You come to accept your life with an Autistic child(ren). Then you learn to embrace it. To appreciate their innocence.

Sure the meltdowns, the poop, the constant messy home STILL aren't that much fun -- but you deal with it. You realize your blessings and find peace in your life.

1 in 100? It's still 6 in 6 for us.

Dad

Autism Awareness Month - So What !!

So what has Autism Awareness Month done for you? Did you think more about your child and their Autism? Let me guess, you think about it all the time anyway. An 'awareness' month, has not really changed how you deal with Autism. Am I right?

What about your family? Did they come over to the house against their self-imposed avoidance of your family? No? Huh, really. You mean they didn't offer to watch the kids? Give you a break? Nothing?!? Didn't they know that it's Autism Awareness Month?

OK, ok. But, I bet you saw THAT celebrity on the talk shows again with their latest book on curing Autism. Do you wonder if it's all about adding some extra zeros into their bank account? Most of the blogs and posts believe that. I don't know, I'm not them. I hope they have a higher goal then just money.

But, there sure have been lots of newspaper stories and local TV reports. So at least some 'awareness' is going on. Right? Did you hear about some sort of new laws... or mandates that came out of Washington this month? Have we seen any real details and how it can positively affect families of Autism? No? Me neither.

I was hoping that since President Obama had lots of changes in mind, that it would include Autism. Autism IS high on his list of things to do. It says so on the White House website. There is next years Autism Awareness Month I suppose. Hmmmm, there still are a couple of days before the end of the month. Maybe we'll get a surprise Autism birthday present!

Hey! Stop holding your breath, I'm afraid you'll pass out.

We should be grateful that we have our own month. But is it for us? Are we getting any real benefit? What do you think? Is it just a bunch of lip service? To make us think that the media, government, etc. do actually care and are concerned?

If not, you need to get off the couch and DO SOMETHING about it! Every MONTH needs to be Autism Awareness Month, where things are getting done to help your situation. Not just a bunch of talk. If you as a parent or a person of Autism don't speak up and I mean really do some shouting... otherwise, we are just sheeple (people that act like obedient sheep) and be thankful for whatever crumbs fall off the 'table' of resources and finances that happen to come along. I'm just one voice, we need many more!

Otherwise, Autism Awareness Month is not for parents or persons of Autism... is it?

Dad

Fed Up With Autism Fighting

Here is a great posting opinion from Tiffany and my comments too:

Tiffany this is a fantastic post and one that EVERYONE should follow the advice of. Every family is different, each Autistic child is different from every other Autistic child. No one should tell another parent or person with Autism what they should be doing with their life... even if they think they KNOW that family from watching them on TV. ;)

Our family goal is to increase the awareness, acceptance and understanding of Autism and all of it's various aspects and effects on families.

Some have accused me of trying to make money from my children. First if they follow your post's advice they shouldn't assume they know what I'm doing and be quite. However we've made money from our situation from a 'location fee' from the film production company. This is a standard in their industry. Then we have made an income from the sales of the Autism t-shirts that Robin and I designed.

But all the other TV, radio, magazine, blog and internet interviews we have received nothing. AND I'm not asking that they do.

95% of the comments we get on our blog or from emails have been positive and supportive. And I will continue to advocate for my children until the day I die. We too did not yell, "Yipee!" when we got the diagnosis for the children. We too did LOTS of grieving, for around 1 1/2 years. I was let go from the job I had at the time because quite frankly, at the time I was useless and not able to have my head into work. Worrying and wondering about what life was going to be like with Autistic children was just too much. It was tough and still is and IS financially hard. And I'm not sorry and will not apologize for mentioning that Autism hits families in the wallet. We've received many, many emails confirming this from other families. And they too are glad that the world is starting to understand those financial hardships. Its a FACT that people need to realize.

We need to stop the fighting among ourselves. It's a waste of time, effort and emotions. Another parent may want to chelate or put their children through test after tests or treatment after treatment after treatments. Or do nothing. Another parent may not agree with either and you know what? Each one is doing right thing for THEM.

That "Autism Czar" appointment that President Obama promised? He/she should understand all the above of what you and I have said here. And have a plan for ALL families and persons affected by Autism. And we need to get the support from this Czar... NOW. Too much talk and not enough action.

My creed: Autism IS a Spectrum Disorder, CAUSED by a spectrum of reasons, needing a SPECTRUM of treatments or solutions and requiring a spectrum of funding.

Peace and Blessing to all... Nuff said.

Dad

Utah Lawmakers Say No to Autistic Kids

Thousands of parents made the trek to the State Capital building many times over the past couple of months. They attended the announcement, committee and floor votes for Clay’s Law. Just what was this landmark proposal? During the past legislative session parents were hoping to get financial relief for treating their Autistic child. What we they asking for? Large grants for experimental treatment methods? No. Did they want a free gift from taxpayers for unproven therapies? Nope. Parents just wanted their insurance companies to provide coverage for early intensive behavioral intervention for children with Autism. Interventions that were already known to be the most effective methods to help these affected children.

But, the costs would way too much for policy holders that may never need these services, opponents claimed. This proposal would have resulted in a less than 1% increase in insurance premiums. The ‘big money’ fact to consider is this: Untreated autism is estimated to cost approximately $3 million over the person’s lifetime. Intensive early behavioral intervention, the type covered by the bill, can cut this down by $1 million. That means the bill could pay for itself with the savings from just three or four children. With 1 of 79 boys in Utah receiving an Autism diagnosis the long term savings would have been tremendous.

So what will they be getting? An option to purchase a ‘rider’ type of policy before the child reaches 3 months of age. Not much help because of the fact that the average ‘severely’ Autistic child is not diagnosed until 18 – 24 months. What about the parents of children who already have an Autism diagnosis? Nothing. Chalk up another one for the insurance companies who seem to be better at taking care of themselves lately.

Dad

Help Me Get a Meeting with President Obama

President Obama ran on a campaign of change. Recently I did a lot of soul searching as to what I need to do to help the Autism community this year. What came to me is that I need to bring some MAJOR recognition to Autism. To do that I felt a meeting with our new President between now and Autism awareness month (April) is needed.

We need changes to the direction of the funding Autism is currently receiving. What I'm hoping that you can help me with is this:

1) Sent me all the stats you have, local especially and nationally too is fine. I need major talking points. I will be posting to our blog to kick this off.
2) If you known someone who knows someone who knows someone, that can get me an appointment... help.
3) If YOU could talk to the President about Autism what would you say?
4) Anything else you think this meeting needs to be or how to make it happen.

Thanks,
Dad