Thanks again for all of the great comments that we've received the past few days!
Reading through our emails, the comments here and the poll to the right that is still on going, it is obvious that there is a VERY large need out there for parents of Autistic children. Autistic parents, see it and KNOW it on a daily basis. But, for Autistic parents to finance ourselves with foundations to help... well that's a bit tough.
Autistic parents are already paying for their own children by getting a second mortgage or going into debt. Sadly, many are not able to do much for their children because Autistic parents don't have the money and the various ASSISTANCE PROGRAMS are not enough. Autistic parents of course have the compassion and understanding of all the challenges that Autism brings, we live it every day.
We need to find people of means (money) that can catch the vision of how financially devastating it is for Autistic parents... And to donate generously to the AutismBites Foundation. That is one of the primary reasons we've felt as a couple that we need to tell our story. We thought that the usual situation of ours would get the attention of the media. Its been pretty good so far, but we do hope for the attention to grow larger and larger.
And its not ALL about us, really!
More attention on Autism hopefully will bring the funding that is so very lacking in many different ways. If Autistic parents can get a full 8 hours of ABA for their children every day. If parents had the financing for diets, intervention and treatments. If Autistic parents had the funds to make their homes safe for their children. IF...IF...IF... then maybe, just maybe... some serious progress can be made.
My goals for my children? Have them get to the point where they can be completely independent and provide for themselves when they reach adult age. We cannot live forever to take care of them.
We didn't ask for this. If our children were six "normal" children we would take care of their needs just fine. The stresses, needs and obligations that I have had to handle as the Dad, has lost me a number of jobs and the provided insurance. I'd imagine that other fathers have faced similar challenges. Tell me if I'm wrong here. Has other Moms been depressed and wonder if they can make it through the day?
So... if Autistic parents could get the support and understanding of their neighborhoods, schools, communities, state and national governments and leaders, friends, the rich and famous AND even their families. It wouldn't be so hard! Most of these children would improve. For those detractors with their calculators in hand, it will cost pennies now OR dollars later. Which would you prefer?