Frequently Asked Questions. In case some of you haven't heard what FAQs are. So, the past few days I've done a bit of lurking on blogs that have been talking about our documentary. I'm wondering if they watched the same one that I saw last Wednesday.
So I've decided to create a recurring post, called simply "FAQs". To make them easy to find, I will have a 'label' category of just the FAQs post. I hope to clear up a large number of misconceptions, misquotes and misinformation about us.
Question: Why did you keep having children when you knew they had Autism.
Answer: All of the children were born before we knew anything. We were first told that Bobby should be evaluated for a 'communication disorder' when he was 11 1/2, Mary, our youngest, was almost 5 months old. This was May 2005.
Question: How old were the rest of the children at that time?
Answer: Emma - 7, Nephi - 6, Sarah - 3 and Ammon - 1 1/2
Question: Wasn't Sarah the next child that you thought may have Autism?
Answer: We were concerned that something may be going on with Sarah. (May 2005). That summer Robin's parents visited us for their vacation. We live in Utah, they live in Minnesota. Robin's mother suggested that maybe something was wrong with Sarah's hearing. She didn't talk, but we weren't overly concerned because Nephi did not talk until he was 3 1/2. Sarah wasn't that old yet.
Question: So when did you find out about Sarah's Autism?
Answer: After Robin's mother's concerns we asked people at church and other friends what they thought. Some also suggested that something may be wrong. We were told of a pre-school in our school district where Sarah could be evaluated. This was August 2005. Two special education teachers visited with Robin and Sarah. They told Robin that they thought she was Autistic. We were shocked, we had no idea what Autism was. We thought she was like Nephi, just a slow talker. We didn't know yet that Nephi had Asperger's Syndrome. Looking back now, we figured that we were too close to the situation and had no idea that something serious was going on.
Question: Come on, you had no idea? No Doctors said anything?
Answer: No, not a single one. We suspected nothing ourselves until Bobby's school said he may have a 'communication disorder'.
Question: So you knew that Sarah had Autism in August 2005.
Answer: No, the preschool said they thought she was. They said they would need to do testing and evaluations once she was enrolled in the pre-school. The determination from the school was in December 2005. They said Autism. However, she did not have an official Doctors diagnoses until October 2006.
Question: Why did it take so long to get the Doctor diagnoses for Sarah?
Answer: John had just started working for a company with great pay and benefits when Sarah's school suggested Autism. (August 2005) We both took it hard, but it affected John's work performance as well. In December 2005 the pre-school said that Sarah HAD Autism. John's father died a few days later, after a long illness. It was a bad month. John asked for a lighter workload, but was told that he should take care of his family problems... at home. John's supervisor said that John had quit. This was not true. But, he had neither the physical or mental strength to fight it out. So we had no insurance for official Doctors diagnoses. We had to wait until Sarah's medicaid kicked in and then wait months for a Dept. of Mental Health appointment.
To be continued...