I've been reading a lot lately about all the in-fighting in the Autism community. It reminds me of Jr. High when the main combatants went to the sand pit near the school right after the last bell.
We would like to know, not only how and maybe why our 6 children are on the Autism spectrum, but what can we do to help them today. We feel that from our research that it must
be a combination of genetics and environmental factors.
Autism Speaks has become the Autism fund raising 800 lbs gorilla. They are doing a lot of research and we are currently involved in the genome study they have funded. What I'd like to see is a branching out from a research mainly mode to include areas that can affect families now. Treatments, diet, education, etc. Follow-up on areas that are having some success and see what else a bunch of money may reveal. Then let us parents know what HELPS our kids. Something now, not just research of causes. That's a 'nice to know' for us that already have Autistic children.
Autism is a spectrum disorder. We need a spectrum approach that can allow the funding to be used for each group to have their own soap box. If Autism Speaks can put all of us under their umbrella, great, if not lets support a group that will.
I named our new blog Autism Bites because we were surprised by the news that all six of our children were ASD, 'snake bit' if you will. I would like to call for a stop to all the Autism community fighting. If well funded groups truly want to make Autism a thing of the past put your money where your mouth is. Not into your pockets, while providing lip service only.